Yesterday the bubble burst. It was a great run, but unfortunately the Tar Heels season ended late yesterday afternoon. It would have been great to have the season extended one more weekend; but it wasn't to be. I went to work this morning and promptly folded my bracket neatly and placed it in the recycling bin.
Some may wonder why a prairie boy from Manitoba might become such an ardent supporter of a school somewhere in the mid-atlantic states. There are a few reasons...the strategy, the college hoop-la, and if you ever get a chance to see a major US college campus...they are really something to see. I've been to Chapel Hill North Carolina and to Lawrence Kansas and both did not disappoint. Both schools, KU and UNC, lost yesterday afternoon. Wasn't a good day. Anyway....as we get closer ot October 15th, my web browser will make more frequent stops to my favourite basketball websites as "this" season slowly fades from memory.
Seasons like this past one are some of my favourites. The championships are nice, but I think I best remember the seasons that didn't quite end so well. Some of my favourite teams were marked by unproven freshmen that played beyond their years and were just fun to watch. They would win big or lose big, but either way they were fun to watch. Some of my favourites were the 99-00 Kansas, UNC 02-03, and UNC 05-06...these were some fun teams to watch. No championships in those years, but the best was yet to come. This seasons version of the Tar Heels had no seniors that played any significant minutes; starting two freshmen, two sophomores, and a junior who had never played a full season due to injury. This team can all return next season...who knows if that will happen...but its interesting to think about. This team was written off in early January after an ospicious start to the season in Puerto Rico, some mediocre games through December and an ugly loss to Georgia Tech in early January. Things were not looking great...then the point guard issue got resolved and it was "game on." (by the way...where is Larry Drew). It's fun to watch a team come together and get better with every game; and this team got exponentially better from mid January to the end of the regular season. The final regular season game against Dook was the best game they played all season...even considering how well the played in the last few weeks...that game...they beat up the Dookies and in the end isn't that what really matters...beating Dook.
Yes...i'm pouting today; did I not mention the reason for doing this blog is largely therapeutic. Sports is a nice diversion from the day to day, but unfortunately the season does have to end. So who will I cheer for next weekend? I think it is interesting that either VCU or Butler will play for the title. Would be nice to see Butler take it; after coming so close last year.
Monday, March 28, 2011
Friday, March 25, 2011
Battling # 2
For anyone who has kids or pets...you get to see your share of "Poop." You just deal with it. It is part of life...and that's that. In our case, we have had to endure months and months of poop. Our poor little boy...(without getting into a lot of detail) has had to deal with diarrhea. This has been going on, off and on, since the transplant. The one thing we have learned is that Doctors are absolutely fascinated with Poop. For several months last summer we actually kept a poop diary. So what do you write on a poop diary??? Good Question. You learn really interesting ways to categorize and describe poop. All factors must be considered. Quantity, frequency, colour, consistency, texture...the list goes on. After a while you begin to think you are going off the deep end. I think the frustrating part is that the poor little boy who is the subject of this exposé of poop, is the one who has to suffer through this. We have tried just about every different kind of diaper rash cream known to man, with marginal success. When we were starting to get very concerned about the state of Russell's bum I sent a somewhat desperate e-mail to our Doctor with the Subject Line: "Russell has a Red Bum" Apparently, that e-mail was distributed around the clinic, as the Doctors found this quite amusing.
So this is what this whole experience boils down too. We have been at the cutting edge of medical technology with world renowned physicians, traveled thousands of miles and what does it all result in? Me...running down the hall in excitement, with a diaper in my hand, to show my long suffering wife a semi solid BM. Now picture that. Can't buy entertainment like that. Then there are the poor souls who have had to endure dinner at our house, as Susan and I discuss the "poop diary." Doesn't everyone do this??
I do like to make a point; and I guess this is it. Life is simple. No matter how much we try to complicate things it always boils down to the simple things in life. Our life is complicated, as most people's are, but I think we need the constant reminder to slow things down and deal with our issues one step at a time and to stop and enjoy the little things. Even if that little thing is in your son's diaper.
Note: How about the crushing defeat of Duke last night? Life is good! All we need is a Carolina win tonight and all would be well in the world!
So this is what this whole experience boils down too. We have been at the cutting edge of medical technology with world renowned physicians, traveled thousands of miles and what does it all result in? Me...running down the hall in excitement, with a diaper in my hand, to show my long suffering wife a semi solid BM. Now picture that. Can't buy entertainment like that. Then there are the poor souls who have had to endure dinner at our house, as Susan and I discuss the "poop diary." Doesn't everyone do this??
I do like to make a point; and I guess this is it. Life is simple. No matter how much we try to complicate things it always boils down to the simple things in life. Our life is complicated, as most people's are, but I think we need the constant reminder to slow things down and deal with our issues one step at a time and to stop and enjoy the little things. Even if that little thing is in your son's diaper.
Note: How about the crushing defeat of Duke last night? Life is good! All we need is a Carolina win tonight and all would be well in the world!
Thursday, March 17, 2011
A Good Cause
I got a call from the Lung Association the other night. Nothing big, just a typical call from a vollunteer looking for other vollunteers to help canvas in the neighbourhood. It wasn't a professional telemarketer, so I was a little more recepetive. Unfortunately, I had to decline and I joked that lungs weren't our organ of choice...after all we are "heart people." I'm sure the person on the phone thought I was a little "off" but it was the truth.
It's an interesting place that we are in. There are so many good causes...how do you chose to support one over the other. I think its really important for people to get involved and vollunteer, give financially, and support in any way that they can. Unfortunately there are huge needs out there and it can make deciding how to give support a complex proposal.
I think that is one way in which our life has actually become simpler. It is really clear to me what I need to do and what causes I should be supporting. There are some very distinct opportunities I have been presented to me; an opportunity to get involved in a way that is a unique fit for us. The interesting twist for me is that I have been able to combine some of my professional skills into some of the causes that I feel passionate about. It is a real win-win.
Today was a day in which I started on a new project. I have become a mentor to an up and coming HR professional. This is a formal relatonship setup by our professional association. This should be a fantastic learning experience for me and I hope that I can provide some guidance to someone who is beginning their career. This is not a charitable cause but it is something I feel is important and which I have a passion for. The HR profession has been very good to me and I think it is right to give back. The same way that I am working with the College of Registered Nurses or the Stollery Children's Hospital. These are all organizations that I have a unique insight into and have unique experiences to share. It makes such a big difference when you really believe in what you are doing.
Now that I have done a promo for vollunteerism; it's time to get back to watching basketball. By the way...I picked Richmond to beat Vanderbilt...of 12 games so far...I have 11 correct picks....take that!!!
It's an interesting place that we are in. There are so many good causes...how do you chose to support one over the other. I think its really important for people to get involved and vollunteer, give financially, and support in any way that they can. Unfortunately there are huge needs out there and it can make deciding how to give support a complex proposal.
I think that is one way in which our life has actually become simpler. It is really clear to me what I need to do and what causes I should be supporting. There are some very distinct opportunities I have been presented to me; an opportunity to get involved in a way that is a unique fit for us. The interesting twist for me is that I have been able to combine some of my professional skills into some of the causes that I feel passionate about. It is a real win-win.
Today was a day in which I started on a new project. I have become a mentor to an up and coming HR professional. This is a formal relatonship setup by our professional association. This should be a fantastic learning experience for me and I hope that I can provide some guidance to someone who is beginning their career. This is not a charitable cause but it is something I feel is important and which I have a passion for. The HR profession has been very good to me and I think it is right to give back. The same way that I am working with the College of Registered Nurses or the Stollery Children's Hospital. These are all organizations that I have a unique insight into and have unique experiences to share. It makes such a big difference when you really believe in what you are doing.
Now that I have done a promo for vollunteerism; it's time to get back to watching basketball. By the way...I picked Richmond to beat Vanderbilt...of 12 games so far...I have 11 correct picks....take that!!!
Wednesday, March 16, 2011
The Eye Surgery
Well...the one thing I have to say is that every procedure that Russell has is always a unique and different experience. This whole process with the eye surgery was quite different than what we are used to.
Whenever we have anything done it is some how related to his heart transplant. This was not the case with the issue with his eyes. Not related to his transplant or any of his past cardiac issues. So as a result, we weren't treated special...we were just another routine patient getting a day surgery. After you get the "special" treatment for so long...being ordinary really sucks.
Our day started early...around 5:00 in the morning as we had to be at Winnipeg Children's Hospital for 6:00. This gives the day ward a chance to do all of the prep-work that needs to be done. We headed down to the operating room waiting area around 7:30 and after a few discussions with the Docs Russell was off to the OR around 8:00. We weren't allowed into the operating room, which was totally new to us. Even when Russell had his transplant we gowned up and took Russell right into the operating room and placed him on the operating table ourselves. The last thing Russell would see was us before the aenesthetic took over. This was not our experience yesterday. This was a little upsetting as Russell is very aware of what happens in hospitals and it would be nice to be able to comfort him before he went "out."
The procedure was quick as we were talking to our Doctor around 10:30 or so and went to see Russell in recovery around 11:00. We were told that this whole process would be quick. We are so used to the Heart Caths that are an all-day adventure, we just assume we are going to be at the hospital all day. Russell woke up fairly grouchy and stayed that way. His eyes were shut and quite puffy...all normal part of the procedure. We were told that he may not want to open his eyes for some time...as they would be quite irritated and scratchy. Being blind did not really go over too well with Russell, or us for that matter.
After we got Russell settled, with some help of a narcotic, we were discharged and were on our way home. We got home around 2:00 PM and spent the rest of the afternoon trying to keep Russell settled. He was really irritable and there was no indication that he was at all interested in opening his eyes. With a little help from Tylenol with codeine we got Russell to bed for the night. Fortunately, he slept well all night. In the morning, he was still not opening his eyes. Through the morning he wanted to do more things and was much less irritable. Finally, around lunch time he began opening his eyes and within a couple of hours he was running around like normal. When I got home from work, other than his very red eyes, you would never have known anything had happenned.
Our first look at his eyes have given us some positive indications that his eyes are much straighter and he seems to be interested in stopping and looking at things...all very encouraging. We have a follow-up appointment next week so we'll see what the Dr has to say about the results. From our perspective...so far...so good.
This is hopefully the last procedure Russell has to endure for sometime. There are a few appointments already set for April and May but we are feeling good that the nasty stuff is behind us. Hopefully, we will have a nice quiet summer with an occasional visit for blood work and not too much else.
Whenever we have anything done it is some how related to his heart transplant. This was not the case with the issue with his eyes. Not related to his transplant or any of his past cardiac issues. So as a result, we weren't treated special...we were just another routine patient getting a day surgery. After you get the "special" treatment for so long...being ordinary really sucks.
Our day started early...around 5:00 in the morning as we had to be at Winnipeg Children's Hospital for 6:00. This gives the day ward a chance to do all of the prep-work that needs to be done. We headed down to the operating room waiting area around 7:30 and after a few discussions with the Docs Russell was off to the OR around 8:00. We weren't allowed into the operating room, which was totally new to us. Even when Russell had his transplant we gowned up and took Russell right into the operating room and placed him on the operating table ourselves. The last thing Russell would see was us before the aenesthetic took over. This was not our experience yesterday. This was a little upsetting as Russell is very aware of what happens in hospitals and it would be nice to be able to comfort him before he went "out."
The procedure was quick as we were talking to our Doctor around 10:30 or so and went to see Russell in recovery around 11:00. We were told that this whole process would be quick. We are so used to the Heart Caths that are an all-day adventure, we just assume we are going to be at the hospital all day. Russell woke up fairly grouchy and stayed that way. His eyes were shut and quite puffy...all normal part of the procedure. We were told that he may not want to open his eyes for some time...as they would be quite irritated and scratchy. Being blind did not really go over too well with Russell, or us for that matter.
After we got Russell settled, with some help of a narcotic, we were discharged and were on our way home. We got home around 2:00 PM and spent the rest of the afternoon trying to keep Russell settled. He was really irritable and there was no indication that he was at all interested in opening his eyes. With a little help from Tylenol with codeine we got Russell to bed for the night. Fortunately, he slept well all night. In the morning, he was still not opening his eyes. Through the morning he wanted to do more things and was much less irritable. Finally, around lunch time he began opening his eyes and within a couple of hours he was running around like normal. When I got home from work, other than his very red eyes, you would never have known anything had happenned.
Our first look at his eyes have given us some positive indications that his eyes are much straighter and he seems to be interested in stopping and looking at things...all very encouraging. We have a follow-up appointment next week so we'll see what the Dr has to say about the results. From our perspective...so far...so good.
This is hopefully the last procedure Russell has to endure for sometime. There are a few appointments already set for April and May but we are feeling good that the nasty stuff is behind us. Hopefully, we will have a nice quiet summer with an occasional visit for blood work and not too much else.
Saturday, March 12, 2011
Russell's Team
I write this note this morning having heard some very bad news. One of Russell's friends from Edmonton is back in hospital. We were in the same room together with this little girl at Christmas time (2008) and became good friends with her family. Russell was born on Aug 5/08 and this little girl was born Aug 8.
She has had huge development issues that I cannot begin to describe. We found out this morning that she was taken to hospital yesterday and has had to have emergency surgery. She has a long road ahead of her. This little one is as tough as they get...she has constantly defied the odds. If anyone can pull this off ... she can.
We are also getting prepared for Russell's surgery on Tuesday. This surgery will attempt to correct Russells eyes that tend to cross. The surgery will take a little over an hour. What the surgeion will do is cut the muscle in the eye and then re-attach the muscle in a new location to straighten the eyes. Measurements have been taken of his eyes to determine where to re-attach the muscle. Russell is far-sighted and wears glasses...this does not get corrected, in this surgery, and he will still need glasses. The surgery does accompish two things. Cosmetically his eyes should look straight, more importantly with both eyes being straight it should give him proper binocular vision. In other words...having both eyes being able to focus on the same thing, which does not happen now because one eye or the other will wander. The other thing that needs to happen is to train Russell's brain to coordinate both eyes after the surgery. The idea is that Russell's brain should like this new vision and will attempt to keep both eyes aligned. So it is a physical correction of the eye but for permanent effect the brain does need to take over and control the muscles around the eyes.
Tuesday will be a long day at the hospital...we'll be in early...around 7:00 AM and I don't expect to leave until 7:00 PM. We were told that Russell should be close to full speed the next day and may not even need Tylenol. They say he should resume normal activity by the second day.
She has had huge development issues that I cannot begin to describe. We found out this morning that she was taken to hospital yesterday and has had to have emergency surgery. She has a long road ahead of her. This little one is as tough as they get...she has constantly defied the odds. If anyone can pull this off ... she can.
We are also getting prepared for Russell's surgery on Tuesday. This surgery will attempt to correct Russells eyes that tend to cross. The surgery will take a little over an hour. What the surgeion will do is cut the muscle in the eye and then re-attach the muscle in a new location to straighten the eyes. Measurements have been taken of his eyes to determine where to re-attach the muscle. Russell is far-sighted and wears glasses...this does not get corrected, in this surgery, and he will still need glasses. The surgery does accompish two things. Cosmetically his eyes should look straight, more importantly with both eyes being straight it should give him proper binocular vision. In other words...having both eyes being able to focus on the same thing, which does not happen now because one eye or the other will wander. The other thing that needs to happen is to train Russell's brain to coordinate both eyes after the surgery. The idea is that Russell's brain should like this new vision and will attempt to keep both eyes aligned. So it is a physical correction of the eye but for permanent effect the brain does need to take over and control the muscles around the eyes.
Tuesday will be a long day at the hospital...we'll be in early...around 7:00 AM and I don't expect to leave until 7:00 PM. We were told that Russell should be close to full speed the next day and may not even need Tylenol. They say he should resume normal activity by the second day.
Tuesday, March 8, 2011
We interrupt this program
The one nice thing about having your own blog is that you can be somewhat self-indulgent....
With March comes March Madness. I received an e-mail from CBS Sports reminding me to get ready for our annual NCAA bracket tournament. Anyone, interested can drop me a note and I'll be happy to send you an invite. We have only one rule. Anyone picking Dook to win, will be penalized 500 points and be subject to ridicule and shame. By the way...my mother-in-law won our pool last year. You don't need to be a basketball genius to play. Hmmm... maybe that didn't come out right.
The next few weeks on this blog may have a bit of a basketball overtone as this weekend starts with the ACC Tournament and then for the next month we eat, breathe, and sleep basketball during the NCAA Tournament. The first weekend is always the best. To give you an idea, this year the TV coverage will be much improved as the first two rounds will be covered by 5 channels. I feel like hugging my satellite dish.
With March comes March Madness. I received an e-mail from CBS Sports reminding me to get ready for our annual NCAA bracket tournament. Anyone, interested can drop me a note and I'll be happy to send you an invite. We have only one rule. Anyone picking Dook to win, will be penalized 500 points and be subject to ridicule and shame. By the way...my mother-in-law won our pool last year. You don't need to be a basketball genius to play. Hmmm... maybe that didn't come out right.
The next few weeks on this blog may have a bit of a basketball overtone as this weekend starts with the ACC Tournament and then for the next month we eat, breathe, and sleep basketball during the NCAA Tournament. The first weekend is always the best. To give you an idea, this year the TV coverage will be much improved as the first two rounds will be covered by 5 channels. I feel like hugging my satellite dish.
Housekeeping
Just a few quick notes:
We got Russell's weekly bloodwork results...his results are borderline awesome. It looks like this week is going to be "hospital free" for the little boy!!!! YAY! Don't have to repeat bloodwork for two weeks!!!
Unfortunately the boy has his eye surgery on Tuesday, so we will be back at Children's next week. On the bright side...the surgery has gotten me out of a trip to Edmonton for meetings. Thank You Russell!
A question: Is it self-serving to teach your kids to memorize Exodus 20:12 ?? We have been having a bit of a power struggle with Nicole, as she feels being a big sister graduates her to parent status where she thinks she can make her own rules. Anyway...we'll see how that goes. How can you go wrong with good material.
We got Russell's weekly bloodwork results...his results are borderline awesome. It looks like this week is going to be "hospital free" for the little boy!!!! YAY! Don't have to repeat bloodwork for two weeks!!!
Unfortunately the boy has his eye surgery on Tuesday, so we will be back at Children's next week. On the bright side...the surgery has gotten me out of a trip to Edmonton for meetings. Thank You Russell!
A question: Is it self-serving to teach your kids to memorize Exodus 20:12 ?? We have been having a bit of a power struggle with Nicole, as she feels being a big sister graduates her to parent status where she thinks she can make her own rules. Anyway...we'll see how that goes. How can you go wrong with good material.
Friday, March 4, 2011
Still VERY Busy
Well it's Friday...glad to have the week over. It has been another busy week. We are fortunate that we have been maintaining our one trip to the hospital/week average. Since mid January, we have had two hospital stays and about a dozen more medical appointments. We are hoping things have settled a bit. One trip a week is still a bit much, so we are hoping that bloodwork results have stabilized so that we can start stretching it out for a couple of weeks. Before Christmas, we were going for blood tests approx every two weeks and that is fairly manageable. Add in all of life's other activities and it doesn't leave a lot of spare time.
In the last couple of weeks, my schedule has also been busy. I spent a few days in Ottawa, for work, and last Monday I had a meeting with the College of Registered Nurses of Manitoba (CRNM). I sit on the Education Committee as a public representative. It is a fascinating experience, and I am gaining some insight into some of the inner workings of the nursing profession. It is really enjoyable. It sounds like my work schedule is going to pick up a bit to as I may be doing a few trips to Edmonton, Calgary, and Ottawa. Hopefully I can keep them to short overnight stays.
March 15 is our date for Russell's eye surgery. For those who don't know, Russell has Strabismus, which is simply crossing or turning of the eye. Russell is far sighted and about a year ago we noticed his eyes starting to cross. We are told this has nothing to do with any of his "heart" issues and is quite common. The surgery he will get to correct this is a day procedure. Not looking forward to this...and it makes you wonder "what next" ???? However, we are looking forward to the results. I remember what he looked like before he encountered this issue. He had his Mom's dark dark eyes and they stared at you like little laser beams. Looking forward to that again. Hope all goes well and that it is successful.
Another big event coming up for our family is registration for school for Nicole. It is so unreal that this has come up so fast. Our little girl is getting big, and its happenning way too fast.
The one nice thing about having such a busy schedule is that the winter has flown by fairly quickly. In a few weeks we'll start seeing some warmer weather, which will be a welcome change. Yes...then all the spring clean-up and lawn mowing season begins. Yes...always something that needs to be taken care of.
In the last couple of weeks, my schedule has also been busy. I spent a few days in Ottawa, for work, and last Monday I had a meeting with the College of Registered Nurses of Manitoba (CRNM). I sit on the Education Committee as a public representative. It is a fascinating experience, and I am gaining some insight into some of the inner workings of the nursing profession. It is really enjoyable. It sounds like my work schedule is going to pick up a bit to as I may be doing a few trips to Edmonton, Calgary, and Ottawa. Hopefully I can keep them to short overnight stays.
March 15 is our date for Russell's eye surgery. For those who don't know, Russell has Strabismus, which is simply crossing or turning of the eye. Russell is far sighted and about a year ago we noticed his eyes starting to cross. We are told this has nothing to do with any of his "heart" issues and is quite common. The surgery he will get to correct this is a day procedure. Not looking forward to this...and it makes you wonder "what next" ???? However, we are looking forward to the results. I remember what he looked like before he encountered this issue. He had his Mom's dark dark eyes and they stared at you like little laser beams. Looking forward to that again. Hope all goes well and that it is successful.
Another big event coming up for our family is registration for school for Nicole. It is so unreal that this has come up so fast. Our little girl is getting big, and its happenning way too fast.
The one nice thing about having such a busy schedule is that the winter has flown by fairly quickly. In a few weeks we'll start seeing some warmer weather, which will be a welcome change. Yes...then all the spring clean-up and lawn mowing season begins. Yes...always something that needs to be taken care of.
Tuesday, March 1, 2011
Being Positive
When we were maintaining our care page; Susan and I often debated how much detail we wanted to include with our updates. It was always a challenge to balance being positive with being realistic. The purpose of the care page was to keep people informed about Russell's or Susan's health situation for so many people who were such a long distance away. To be very honest, the care page was quite sanitized. Some of the negative details or even graphic pictures we steered away from as we felt it didn't do anyone any good. We were battling our own battle of trying to stay positive in a not so happy situation.
I remember when we were interviewed on the radio in Edmonton. It was a fundraising radiothon to raise money for the Stollery. I remember how upbeat we were during that interview. Not sure if that was the best thing for raising money, as nothing beats a real "tear jerker" for whipping up sympathy and of course the cheque book. I think we felt so thankful and relieved that we were doing "OK." Was Russell still in very serious condition at that time...yes...of course he was. Our whole hospital experience changed us and taught us a lot of very hard lessons. We look at life so differently now.
Many people ask us how we can be so positive. I think that is an interesting question; as I don't think Susan or I are naturally positive people. If you were to ask us about our whole experience I could tell you about the many amazing people we have been so fortunate to meet. These include some incredible medical professionals, families of kids with life threatening illnesses, and numerous old friends who, because of our situation, we have been re-connected with. We have also had many opportunities to speak in public about our story and have become involved with several organizations. All of these opportunities have been afforded to us as a result of our experiences. On the other hand, we have and will have our moments when we fall apart. In particular, the past month and a half have been difficult; and it frustrates us. I don't want to convey the impression that everything is under control. In many ways they are not. These are the peaks and valleys that are likely to continue as the journey we have embarked on is life-long. Everything is about balance and focussing on what's important. In many ways, our life has become a lot simpler.
I remember when we were interviewed on the radio in Edmonton. It was a fundraising radiothon to raise money for the Stollery. I remember how upbeat we were during that interview. Not sure if that was the best thing for raising money, as nothing beats a real "tear jerker" for whipping up sympathy and of course the cheque book. I think we felt so thankful and relieved that we were doing "OK." Was Russell still in very serious condition at that time...yes...of course he was. Our whole hospital experience changed us and taught us a lot of very hard lessons. We look at life so differently now.
Many people ask us how we can be so positive. I think that is an interesting question; as I don't think Susan or I are naturally positive people. If you were to ask us about our whole experience I could tell you about the many amazing people we have been so fortunate to meet. These include some incredible medical professionals, families of kids with life threatening illnesses, and numerous old friends who, because of our situation, we have been re-connected with. We have also had many opportunities to speak in public about our story and have become involved with several organizations. All of these opportunities have been afforded to us as a result of our experiences. On the other hand, we have and will have our moments when we fall apart. In particular, the past month and a half have been difficult; and it frustrates us. I don't want to convey the impression that everything is under control. In many ways they are not. These are the peaks and valleys that are likely to continue as the journey we have embarked on is life-long. Everything is about balance and focussing on what's important. In many ways, our life has become a lot simpler.
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